Are Flu shots mandatory now??? I keep getting recorded messages that my daughter needs a recommended immunization. Then it says flu shots are important to keeping her healthy. I feel like telling that fucking recording well guess what 3 days after last years flu & H1N1 shot she got sick, her asthma kicked in and she was hospitalized. Now she has diabetes and gets shots every day. That Flu shot didn't really keep her healthy now did it. She had so many colds last year. I know the Flu shot doesn't cover colds but when it does then they could say it will help keep her healthy. I have received recorded messages from the Pediatrician, Health insurance and the state. WTF I even got 2 letters in the mail telling me that flu shots are now available and she needs one.
This year since its our 1st year with Diabetes I wanted to make sure she was covered for everything and I did want to get her a flu shot but she has been fighting us on all of her shots. We are tired of struggling so I don't want to traumatize her once more this year and get the flu shot. We will be skipping the flu shot this year. Hope the Pediatrician, Health Insurance & State don't send the police. I just don't understand the pressure or the persistence of pushing for us to get her flu shot.
Tuesday, September 27, 2011
Monday, September 26, 2011
Pump Training Tomorrow
Tomorrow we have our pump training for Elyssa's new pump. We watched the video today I sort of went through the handbook. I had a short attention span and kept forgetting where I was reading so I gave up. Elyssa has been really fighting us when we try to give her insulin injections lately. Pumping can't come soon enough. I said before I am afraid to give up the 24hr long acting Levimir for short acting basal insulin. I'm afraid we will get more lows. I'm also worried she is not going to handle having the pump on her 24/7 but we shall see. I think she's smart and will rather the pump with a site change every 3 days rather than shots 4-5x a day. I'm really sick of all the up & down BG numbers that Diabetes causes. Last week we got tons of highs now we're having big drops and lows this week. It's really depressing when you try so hard to get good numbers but Elyssa is so sensitive and bounces around all over the place. So today I was good with her numbers. We didn't have anything over 250. Yay.
Todays BGs were
2am 187
4am 153
7am 59
11am 56
2:30pm 242
3:30pm 144
5pm 131
8pm 142
10:30pm 209
Not proud of the lows but sometimes it's hard to get them back up. I think we did a good job with Elyssa's BG levels today. I hope we can do a good job with the pump too.
Todays BGs were
2am 187
4am 153
7am 59
11am 56
2:30pm 242
3:30pm 144
5pm 131
8pm 142
10:30pm 209
Not proud of the lows but sometimes it's hard to get them back up. I think we did a good job with Elyssa's BG levels today. I hope we can do a good job with the pump too.
Tuesday, September 13, 2011
Will she remember the Good or Bad days?
Saturday Elyssa woke up from a nap, she wanted milk, I handed her the milk and oh shit she couldn't grasp the cup. Before she took her nap she was 157. I checked her really quick and got a 53. What the hell why didn't I check her BGs first before I took my sweet time getting some milk? Did my brain briefly forget she has diabetes? I got the Smarties, a banana & juice so she could pick which one she wanted. I opened the Smarties and she kept crying saying something like twister or twist it. Ok I couldn't figure it out so Cake Mate gel went into the mouth she licked it, liked it & I gave some more. Well after a couple mins. of my heart dropping, wondering if her BG was raising we finally figured out my darn independent 2yr old just wanted to open/twist open the Smarties wrapper by herself. So she ate 1 Smarties, 1/2 banana, 1 Glucerna mini chocolate bar & 1/2 cup of Soy Milk.
I didn't care if she spiked I just wanted her up and over 100. So when I checked her 30 mins later I expected a 200+ but nope she was at 100. Then I thought crap maybe when I got the 53 I should've checked her again maybe she was lower. She has been really sensitive to insulin the past couple days so who knows. I felt so bad I cried. It took 20mins. for her to actually eat all the stuff. What if in those 20 mins. she plummeted lower? Oh..how all those thoughts, What Ifs, and coulda, woulda, shouldas take a toll on the emotions. I beat myself up for it for about 2hrs then I looked at her. She was dancing and singing. She came over and gave me a big hug and patted my back. It was like she was saying mommy I'm ok don't worry anymore. Maybe I forgot a step, missed a step or ran around crazy like a chicken with my head cut off trying to find sugar in my house but everything turned out okay. I tried my best. Elyssa was okay. I had to let the fear go, take a shot of Tequila or maybe 2 and just shake off all the emotions.
Sunday came we took Elyssa to get her hair cut. I think maybe the DKA & High blood sugars took a toll on her hair especially since she was pulling it out when we got home from the hospital. I chickened out and didn't go as short as I wanted too. It still looks cute but her curls are gone. :'( Then we were on our way to the park and came across a family farm selling jams, eggs & pickeled items. Elyssa got to see horses, goats, rabbits, chickens, quails, peacocks, pigs and a really huge tortoise for free. Elsewhere farms might be common but in Vegas I couldn't believe it. Elyssa is so scared of animals and all insects. She is even afraid of ladybugs it's so sad. The owners said we can take her anytime so she can get use to the animals. We spent so much time there when we got to the park the sun was going down. She hurried and went on the slides, the swings and ran around. She hasn't done that in a long time. All day her BGs stayed between 100-175. It was a great day. I will probably remember all the scary bad days. Hopefully she will only remember all the good days!
I didn't care if she spiked I just wanted her up and over 100. So when I checked her 30 mins later I expected a 200+ but nope she was at 100. Then I thought crap maybe when I got the 53 I should've checked her again maybe she was lower. She has been really sensitive to insulin the past couple days so who knows. I felt so bad I cried. It took 20mins. for her to actually eat all the stuff. What if in those 20 mins. she plummeted lower? Oh..how all those thoughts, What Ifs, and coulda, woulda, shouldas take a toll on the emotions. I beat myself up for it for about 2hrs then I looked at her. She was dancing and singing. She came over and gave me a big hug and patted my back. It was like she was saying mommy I'm ok don't worry anymore. Maybe I forgot a step, missed a step or ran around crazy like a chicken with my head cut off trying to find sugar in my house but everything turned out okay. I tried my best. Elyssa was okay. I had to let the fear go, take a shot of Tequila or maybe 2 and just shake off all the emotions.
Sunday came we took Elyssa to get her hair cut. I think maybe the DKA & High blood sugars took a toll on her hair especially since she was pulling it out when we got home from the hospital. I chickened out and didn't go as short as I wanted too. It still looks cute but her curls are gone. :'( Then we were on our way to the park and came across a family farm selling jams, eggs & pickeled items. Elyssa got to see horses, goats, rabbits, chickens, quails, peacocks, pigs and a really huge tortoise for free. Elsewhere farms might be common but in Vegas I couldn't believe it. Elyssa is so scared of animals and all insects. She is even afraid of ladybugs it's so sad. The owners said we can take her anytime so she can get use to the animals. We spent so much time there when we got to the park the sun was going down. She hurried and went on the slides, the swings and ran around. She hasn't done that in a long time. All day her BGs stayed between 100-175. It was a great day. I will probably remember all the scary bad days. Hopefully she will only remember all the good days!
Wednesday, August 31, 2011
I thought I got the hang of it, Guess I don't!
After meeting with the representatives of 3 different insulin pump companies we have gone with the Animas Ping. I do still want the Omnipod but since we are new to this I like the fact that I can change her insulin dose through the remote or on the pump. My mind is really not good at remembering everything right now so I know I would probably forget the PDA thing for the Omnipod and that wouldn't be good. I just need the endo. dr. to write the prescription for the Animas so we can get it ordered. I really hope that doesn't take too long.
It is so true that once you think you have Diabetes down you don't. Our first 2 weeks Elyssa was sooo high 300-HI. Then weeks 3 & 4 we had lows 33+. Weeks 6,7, & 8 were 60 to 250 but she was mostly 100-200. Which I thought was pretty good considering how much work it took to get there. I thought to myself wow I can do this, I finally got the groove of it. Well, Week 9 has started off really stressful. We are back in the 300s. Elyssa doesn't even seem bothered at the 300s these past 2 days & nights. I don't know where the hell they came from but I can't seem to stop them from happening and they're hard to correct. Her 3rd Birthday is coming up in about 2 months so don't know if it is a growing issue. I think I always try to find a reason of why she gets high even though I know I will probably never find out why. We had it down to where Elyssa only needed 3-4injections but now with these 300s we gave her 5injections yesterday (5x of getting everything ready, 5x of chasing her around the house, 5x trying to hold her down, 5x trying to hold my breath hopefully I don't hit a blood vessel or she doesn't move, 5x consoling her & wiping away tears). Man I want an insulin pump. I know there will be another learning curve with the pump but these injections are really stressing me out right now. I guess I'm in the I'm already sick of this mode. Can someone PLEASE hurry and find a cure?? I know people have been dealing with this sooo much longer than me but I don't want to do it anymore. Where is the effin Rewind button? I just want to rewind back 2months is that too much to ask? Ok I'm done whining. Sorry
Ok I'll end on a cute note. We were at my friends house last nite and Elyssa was 340. I gave her 2 units and nothing. Usually 2u would bring her down fast. Elyssa wanted to eat some pretzels. We had the kids run around & play to see if the insulin would take effect. Well Elyssa ate some pretzels then my friend's 5yr old son said "Elyssa Don't eat more pretzels, you're gonna get MORE Diabetes". I thought it was Too Cute, I loved it!!!
It is so true that once you think you have Diabetes down you don't. Our first 2 weeks Elyssa was sooo high 300-HI. Then weeks 3 & 4 we had lows 33+. Weeks 6,7, & 8 were 60 to 250 but she was mostly 100-200. Which I thought was pretty good considering how much work it took to get there. I thought to myself wow I can do this, I finally got the groove of it. Well, Week 9 has started off really stressful. We are back in the 300s. Elyssa doesn't even seem bothered at the 300s these past 2 days & nights. I don't know where the hell they came from but I can't seem to stop them from happening and they're hard to correct. Her 3rd Birthday is coming up in about 2 months so don't know if it is a growing issue. I think I always try to find a reason of why she gets high even though I know I will probably never find out why. We had it down to where Elyssa only needed 3-4injections but now with these 300s we gave her 5injections yesterday (5x of getting everything ready, 5x of chasing her around the house, 5x trying to hold her down, 5x trying to hold my breath hopefully I don't hit a blood vessel or she doesn't move, 5x consoling her & wiping away tears). Man I want an insulin pump. I know there will be another learning curve with the pump but these injections are really stressing me out right now. I guess I'm in the I'm already sick of this mode. Can someone PLEASE hurry and find a cure?? I know people have been dealing with this sooo much longer than me but I don't want to do it anymore. Where is the effin Rewind button? I just want to rewind back 2months is that too much to ask? Ok I'm done whining. Sorry
Ok I'll end on a cute note. We were at my friends house last nite and Elyssa was 340. I gave her 2 units and nothing. Usually 2u would bring her down fast. Elyssa wanted to eat some pretzels. We had the kids run around & play to see if the insulin would take effect. Well Elyssa ate some pretzels then my friend's 5yr old son said "Elyssa Don't eat more pretzels, you're gonna get MORE Diabetes". I thought it was Too Cute, I loved it!!!
Sunday, August 14, 2011
Which pump to Choose???
We went to the endocrinologist on Weds. and got me frustrated. First we fill out the questionaire paperwork full of questions each time you go asking about BG levels, any low episodes, what did she eat that day it's like 50 questions. Then we met with the Dr. and they ask "What would you like to get out of this appointment today"? Well my daughter has only been diagnosed a month so really I don't know what the hell I'm supposed to get out of the appt. I did want to talk about her numbers and about a pump so that's what I say. Instead of looking at all the numbers they uploaded from her meter he asks what numbers would you like to talk about. I respond all her numbers in the middle of the night that are under 70 are pretty important I think. So we changed her Levimir dosage at night.
Ok so now onto the talk about pumps. He said of course we can get her on a pump if you want let me go bring you some samples. So he brings 4 different colors of the Minimed Paradigm Revel Pump. Of course that was the pump I knew the least about. The majority of the people I've heard from on the DOC have Animas Ping or Omnipod. So I tell him we got a demo pod from Omnipod and we really like the no tubing aspect. He discouraged against it because he said there is a high failure rate compared to other pumps, that its big and Elyssa could hit it off her arm, that it's harder to take off etc, etc. He said I should start off with the Minimed since it has the CGM integrated into the pump so it will be less remotes to carry around. Ok thats a valid point but all weekend I have looked all over the web and see pros and cons for each pump but I still prefer the no tubing. I thought well I can't knock it til I try it so I thought I'd go with the Minimed. That way if something went wrong with the Omnipod I wouldn't hear I told you so from the Dr. Then on some peoples blogs I saw that you have to enter into contracts. So would that mean I couldn't change the pump til the contract ends? If I'm going to be stuck with a pump I rather it be the one I want. Another problem is how do I get insurance to pay for it or how do I try to pay for it myself. So that might be another big factor go with the pump my insurance will pay for or struggle even more for the one I want.
I made a funny this week. Elyssa was playing with her lancing device and I said "Be careful you're gonna poke your finger". hahaha Uh Duh. She looks at me and said "you poke a me too much mommy, when the moon comes out you checka my finger, when im sleeping, when the sun comes out u checka my finger. It's crazy before you'd be scared of every poke, bruise, scrapes or cut your child could get. Now she always has pokes and sometimes bruises. Good thing is this week her vocab has really came back she's back to saying her silly sentences and we went through the ABCs, Shapes and Colors with no problems. So that was a sigh of relief. I was really scared that the DKA had messed with her brain a little. Now it's onto trying the potty training again. It seems like every time we got her potty trained she ended up in the hospital for Asthma and she had to wear diapers because she was all wired up. So now I'm really scared that she has Asthma & Diabetes and Flu season is coming.
Ok so now onto the talk about pumps. He said of course we can get her on a pump if you want let me go bring you some samples. So he brings 4 different colors of the Minimed Paradigm Revel Pump. Of course that was the pump I knew the least about. The majority of the people I've heard from on the DOC have Animas Ping or Omnipod. So I tell him we got a demo pod from Omnipod and we really like the no tubing aspect. He discouraged against it because he said there is a high failure rate compared to other pumps, that its big and Elyssa could hit it off her arm, that it's harder to take off etc, etc. He said I should start off with the Minimed since it has the CGM integrated into the pump so it will be less remotes to carry around. Ok thats a valid point but all weekend I have looked all over the web and see pros and cons for each pump but I still prefer the no tubing. I thought well I can't knock it til I try it so I thought I'd go with the Minimed. That way if something went wrong with the Omnipod I wouldn't hear I told you so from the Dr. Then on some peoples blogs I saw that you have to enter into contracts. So would that mean I couldn't change the pump til the contract ends? If I'm going to be stuck with a pump I rather it be the one I want. Another problem is how do I get insurance to pay for it or how do I try to pay for it myself. So that might be another big factor go with the pump my insurance will pay for or struggle even more for the one I want.
I made a funny this week. Elyssa was playing with her lancing device and I said "Be careful you're gonna poke your finger". hahaha Uh Duh. She looks at me and said "you poke a me too much mommy, when the moon comes out you checka my finger, when im sleeping, when the sun comes out u checka my finger. It's crazy before you'd be scared of every poke, bruise, scrapes or cut your child could get. Now she always has pokes and sometimes bruises. Good thing is this week her vocab has really came back she's back to saying her silly sentences and we went through the ABCs, Shapes and Colors with no problems. So that was a sigh of relief. I was really scared that the DKA had messed with her brain a little. Now it's onto trying the potty training again. It seems like every time we got her potty trained she ended up in the hospital for Asthma and she had to wear diapers because she was all wired up. So now I'm really scared that she has Asthma & Diabetes and Flu season is coming.
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